Craniosynostosis

Boston Adventure Part 2

So I've been meaning to write this post for a while now... It's been easier for me to share on social media then to sit down and write everything we experienced, but I've finally brought myself to a point where writing it out brings closure. It's been 7 weeks since Ezra went back for surgery… Continue reading Boston Adventure Part 2

Craniosynostosis

Pre-Op Prayers

We are officially less then 3 weeks away from surgery and I keep getting asked the same questions... How are you doing? Are you Ok? How's Josh? How's Ezra? How are you handling this? So... How are we doing?... Well Ezra is doing the best of all of us right now, he has no idea… Continue reading Pre-Op Prayers

Craniosynostosis

40 Questions to ask your doctors about Craniosynostosis.

Several fellow cranio parents have asked me what questions we asked during our consult for a 2nd opinion (we also had a 3rd opinion via email) so I’ve compiled my list. When Ezra was diagnosed I started doing a TON of research and talking to other moms to gather as much information as possible on… Continue reading 40 Questions to ask your doctors about Craniosynostosis.

Craniosynostosis

Boston Adventure Part 1.

Last week we traveled to Boston, MA for a 30 minute consult with some of the country's leading doctors in cranio-facial plastic surgery (Dr. John Meara) & neurosurgery (Dr. Mark Proctor). When we first learned about craniosynostosis I took to my "frienemy" a.k.a. google to find out more about it. The first video that came… Continue reading Boston Adventure Part 1.

Craniosynostosis

Craniosynostosis (cray-nee-o-sin-o-stow-sis)

The premature fusion of an infant’s skull… or as I like to call it the cutest baby syndrome. We all think our kids are the cutest but mine serious is the cutest! Ever since he was born we always joked that he looked like a little ole grumpy man. We never thought that little ole… Continue reading Craniosynostosis (cray-nee-o-sin-o-stow-sis)